Thursday, March 31, 2011

Let's Talk....

Get ready because this is going to be another "preachy" migraine post......

Last night was the 7th night in a row that I had to take one of my mega pills and go to bed with a migraine! I mean enough already, I am in a bad cycle that I want to stop. Whenever I post about my migraines on Facebook everyone is so kind and they try to offer their help and I am so thankful to have such nice friends..... but at the same time I have been diagnosed for over 10 years and it's not like I sit around sick....I have tried everything.
1. I have a CO detector in my home and that is not it
2. I went to a chiropractor for 3 years and that did nothing
3. I have had 2 MRI's
4. I have a neurologist who I regularly see
5. I am on a daily preventative medicine
6. I have 2 very expensive prescriptions I take when a migraine comes on.....but the wonderful people at the insurance companies limit the number of meds migraine sufferers can take......6 of one a month and 18 of the other. Since I have more migraines than that I have to choose if I can suffer thru this one as to save my meds.
7. I get 8 hours a sleep every single night
8. I do not drink or smoke
9. I watch what I eat

As you can see I do and have tried everything. And I totally realize that with an illness you can not see that it is easy to look at someone who suffers from migraines and think "oh you have a headache" and you have no idea. When you take these heavy duty migraine pills you are suppose to take them and go to bed but that is not realistic, they make you very woozy......I have learned to work thru the fog because in what life do you have time to miss work and lay in bed all day?  I just want people to know it is so much more then a little headache..........sometimes I literally think I am going to die and I don't mean such a debbie downer but at times it is hard to pull myself out of a dark place. Do you know what it is like to pray EVERY single night "please God let me wake up feeling ok".....I would kill to know what it is like to just wake up everyday feeling normal. If I am ever out late with friends, or out of town or doing something out of the normal in my head I am beyond stressed wondering if I am going to get sick. I get by each day at a time. I wish there was more education on migraines....I have written Oprah (go figure) I mean imagine if she did a show? People would maybe stop thinking I am some baby with a little headache. I don't mean to be all up on my soap box and lecturing everyone but I am passionate about this. I would do anything to be normal and from time to time I just need to get this all "out there"!!
Thanks for listening.........


Erin said...

I hate you are having them so regular! I have them about once a month during that "time" and then whenever I get really stressed. I used to have them all the time, but I've got them under control right now.
There are some foods and drinks I have to stay away from and if I don't I know the end result.
People don't understand that it's just not any headache! Mine were so bad that I used to have to be taken to the doctor each time to get a shot of demerol to basically knock me out for the rest of the day.
I totally understand what you are feeling and I'm praying for you!
It really bothers me that insurances limit how many you can get!!
Sorry for the rant... :)

Kaylyn said...

Nicole, I'm so sorry you are feeling bad again. Have you ever talked to your doctor about a gluten free diet? I know it's not an option for everyone, but a friend's mom suffered from migraines and she ended up being allergic to gluten and she has since moved to a gluten free diet and the migraines stopped. You know anything about this?

Scarlett said...

Hi. I am a migraine sufferer too. My prescription was so expensive, that I just didn't get it filled. And the other medicine they prescribed me made my tongue swell! My doctor wrote me a script for flexeril, which is a muscle relaxer, and it has been the only thing that helps me!! I am sorry you are in a bad cycle. I know how you feel and I do not like it. I hope you break that cycle soon!

Beth said...

I know exactly how you feel! I wish that not having a headache could be the norm for us instead of having one. And I hate that I only get 18 pills a month so I have to stress about if I'm going to run out or not and what days I'll choose to not take the medicine and just suffer! I hate when people offer me Tylenol too! I know they're trying to be nice, but people who don't have bad migraines just don't understand!

Becky said...

I know we have talked about this before, but I completely agree. POTS does the same thing to me. I pray for "normal" days and am so anxious each morning wondering if I will feel OK. I am also stressed when I do things out of the ordinary...not sure how long it will take me to recover cause I know I know I will need to. There is no "if" anymore, it is just a fact of life now.

Anonymous said...

Has your neurologist suggested any vitamins? I take 500mg of magnesium daily and that really helps. I also advoid red wine, chocolate, and acidic foods.

Anonymous said...

Natalie said...

I'm so sorry you're having another bad run of migraines. You're in my prayers and I hope they let up soon!


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